In particular:
- contribution to consultations on specific health and well-being research agenda
- assisting investigators in developing study designs that are relevant and have a good chance of recruiting research participants and
- assisting the efforts of the local NHS to improve the experience of research participants and
- contributing to the work of Local Specialty Groups whose remit is to asses 'feasibility and do-ability' of the NIHR Portfolio studies.
To acheive this Essex and Hertfordshire CLRN are working on a number of activities.
Generic Slide Show Template Available For all NHS Services To Inform Patients About Research Opportunities & To Introduce Research Teams
These slides support the Department of Health's strategy which puts patients at the centre of the NHS and supports informed choice by ensuring:
“that patients are notified of opportunities to join in relevant ethically approved research and are free to choose whether they wish to do so. Research is a core part of the NHS. The NHS will do all it can to ensure that patients, from every part of England, are made aware of research that is of particular relevance to them” (Handbook to the NHS Constitution 8th March 2010)
We are pleased to say that the concept endorsed by the NIHR originated locally within the Essex and Hertfordshire CLRN. The slides were trialled in 2009 usingTV screens in the waiting area of two Colchester general practices. A working group including staff and patient representatives from across the Primary Care Research Network, Diabetes Research Network and Research Design Service in the East of England and Essex & Hertfordshire CLRN was set up in 2010 to facilitate further development and to explore options for wider application in a consistent manner. This resulted in a Power Point slide template that can be easily tailored to promote local NHS organisation's involvement with the NIHR research, their local research sites, teams and current studies available for patients to join in.
The slide set is available free of charge and is designed to be displayed on TV screens in patient waiting areas. The slides can be tailored to your organisation and will include information about the NIHR research taking place in the local area.
To register interest in a bespoke set of slides for your NHS health service please enter details on: http://www.surveymonkey.com/s/HNKKGCX
For further information please contact Elaine Anderson at Essex and Hertfordshire CLRN on: 01206 288 251 clrn@northeastessex.nhs.uk
To preview an example of the slides please click here.
Useful Links and more Information
www.getinvolved.nihr.ac.uk
This is a link to a very interesting and informative video talking about Clinical Research from many different points of view from patients, researchers and clinical staff.It explains clearly and in great detail about taking part in clinical research.
www.crncc.nihr.ac.uk/ppi
If you are a patient or carer, or perhaps a member of public with an interest, you can help research. You could become a participant in clinical research study that may benefit many people. You could even help shape clinical research by becoming more actively involved and having a say. There is a wealth of information about research on this website.
http://www.patientvoices.org.uk/flv/0570pv384.htm
A patient’s story of taking part in Motor Neurone Disease research
http://www.nhs.uk/video/pages/clinical-trial.aspx
A patient’s story of taking part in Breast Cancer Research
http://peopleinresearch.org/
This is for people who would like to find out more about public involvement in research.There is information explaining public involvement in research and interviews with people who have been involved in research who share their views and experiences.
Download the get involved with health research flyer
PDF file, 307.8 KB
Download a guide on how to become involved in health research
PDF file, 201.4 KB
You might also like to see presentations and notes from the PPI In Research Workshop that was held as part of our 2012 Best Practice in Research Event on the news page on this site.
