Patient and public involvement: One of the key pillars of our research network
The NIHR CRN is committed to involving patients, carers and members of the public in all stages of the research process to make sure that research is relevant to those that matter most – the patients. The Clinical Research Network has implemented a national strategy for involving patients and the public in research. We, like other Comprehensive Local Research Networks (CLRNs) are contributing to the national approach by putting plans into practice so that patients and the public can help shape research locally.
West Midlands (South) CLRN values the contribution of patients and members of the public in its service. We have a dedicated Patient and Public Involvement Officer who oversees this work.
Patient & Public Involvement Strategy
Our network has in place a Patient and Public Involvement (PPI) Strategy and action plan. This plan includes workstreams on capturing the impact of PPI involvement in research studies, organising PPI in Research awareness events across the region, delivering PPI in Research workshops and supporting the local Patient and Public Advisory Group.
To find out more about the PPI work in this network, please take a look at our PPI Strategy and Delivery Plan.pdf by clicking the link.
Patient and Public Advisory Group
West Midlands (South) CLRN recognises that we need to create a culture for patients and members of the public to not only contribute to our work but eventually lead on many of the PPI activities. A group comprising solely of patients and members of the public has been established to discuss and provide advice on PPI strategies and initiatives across the network. This group meets at locations across the region every month and is an active group ensuring the network places PPI at the forefront of its function.
The Patient and Public Advisory Group (PPAG) has developed Terms of Reference for its work and a role description document to clearly identify what is expected from members and the West Midlands (South) CLRN. In addition, the PPAG has developed a set of ground rules to be used during and outside of meetings, to support effective communication and confidentiality of the issues discussed.
Please see our PPI Recruitment flyer.
If you would like to become a member of the Patient and Public Advisory Group please complete the Volunteer Registration Form.
The Group will meet on the following dates:
Tuesday 21st Jan 2014
Tuesday 18th Feb 2014
Tuesday 18th Mar 2014
Tuesday 15th Apr 2014
Tuesday 13th May 2014
Tuesday 17th Jun 2014
Tuesday 14th Jul 2014
Tuesday 19th Aug 2014
Tuesday 23rd Sep 2014
Tuesday 21st Oct 2014
Tuesday 18th Nov 2014
Tuesday 22nd Dec 2014
Patient and Public Involvement in Research Workshop
West Midlands (South) CLRN offers a PPI workshopfor all individuals who are interested in research and would like to become a volunteer for the CLRN. This half-day workshop is free and takes place at various locations in the West Midlands (South) region. Everyone interested in PPI in research, especially patients and members of the public and NHS Staff, is welcome to attend.
We will be delievering the PPI in Research workshop at various locations in the voluntary and community sector during January-March 2014. Further information is available via the following links:
PPI Workshop FEB 2014 Brunswick
PPI Workshop FEB 2014 Carers Centre
PPI Workshop MARCH 2014 AGE UK
If you would like to attend one of our PPI workshops, simply register your interest at firstname.lastname@example.org
Patient and Public Involvement in Research Awareness Events
A series of PPI in research awareness events has been organised across a number of locations in Coventry, Warwickshire, Herefordshire and Worcestershire. Please contact the PPI Officer to find out where the events are taking place.
Volunteer Opportunities or Interested in Research?
The West Midlands (South) CLRN ensures patients and health workers have access to research in Coventry, Warwickshire, Herefordshire and Worcestershire.
The network is continually looking for individuals who would like to volunteer to support the network to develop effective patient and public activities and support patient recruitment to clinical research studies. We are looking for individuals from various backgrounds to be involved in various PPI activities. If you would like to express an interest to volunteer, or to find out further information about participating in one of our research studies, please complete the Volunteer Registration Form / Interest in Research Study Form Our volunteers are regularly supported.
Read our PPI Leaflet and our CLRN Patient Charter.
Read our Frequently asked questions regarding clinical trials.
If you would like more information on our PPI work, please contact us on 024 7696 5140, or email our Patient and Public Involvement Officer on Research.PPI@uhcw.nhs.uk
What happens if you decide to take part in a clinical trial?
Often people are undecided whether to take part in a clinical trial.This may be due to never previously haven taken part, negative media stories, anxiety of being ill treated and not understanding the process and language of research in the NHS.At the West Midlands (South) Comprehensive Local Research Network we offer support to discuss any anxiety you may have to take part in research.You can do this by contacting our Patient and Public Involvement Officer, attending research awareness events or attending a patient and public involvement in research workshop.
We have also added the ‘Clinical Trial Simulator. The London (North West) Comprehensive Local Research Network (CLRN) developed this clinical trials simulator to show the different stages of taking part in a clinical trial.The aim of this simulator is to convey the jargon and the process of clinical trial in a fun and accessible way. Users will guide their on-screen character through the clinical trial, from initial recruitment to finding out if the new treatment they have taken - a pill to make a human fly - really works. Useful links
UK Clinical Trials Gateway
The UK Clinical Trials Gateway provides easy to understand information about clinical research trials running in the UK, and gives you access to a large range of information about these trials.
Supporting public involvement in NHS, public health and social care research
NIHR PPI website
If you are a patient or carer, or perhaps a member of public with an interest, you can help research. You could become a participant in clinical research study that may benefit many people. You could even help shape clinical research by becoming more actively involved and having a say.
People in Research
Opportunities for public involvement in clinical research
Healthtalkonline is the award-winning website of the DIPEx charity, which lets you share in more than 2,000 people's experiences of over 60 health-related conditions and illnesses. You can watch video or listen to audio clips of the interviews, read about people's experiences if you prefer and find reliable information about specific conditions, treatment choices and support.
This is a website is about young people’s real life experiences of health and lifestyle. This is not just a website about the medical facts; this is about real people and real lives.
The James Lind Alliance
The James Lind Alliance is a non-profit making initiative which was established in 2004. It brings patients, carers and clinicians together to identify and prioritise the top 10 uncertainties or 'unanswered questions', about the effects of treatments that they agree are most important.
Research helps to bring about changes that improve our lives, and the lives of our children, our families and the environment we live in. A citizen scientist is someone who helps to make this process happen. Many people volunteer to participate in trials but just as important are the people who help researchers make sure the research is relevant and important. Members of the public can make a real difference to health and social care research. They can help increase knowledge and understanding of important issues that affect us all.