Active involvement in clinical research is very different from being a participant in a study.
The needs and views of patients and the pubic are important to us, and fundamental to ensuring that research is relevant and to the benefit of those who use primary care services. We actively involve patient and public representatives in our work by providing opportunities for you to:
- Tell us what research is important for your area
- Tell us how research should be done
- Tell us how we can improve your research experience
- Tell us how we can improve the research experience for others
For instance, a review of the patient and carer experience can help us to optimise recruitment to other studies in the future.
An example of how patients are helping the Primary Care Research Network can be viewed here, including testimonial videos from some of the patient representatives involved.
Further examples of how you can be involved and how you can benefit can be found on the patient and public pages of the Clinical Research Network website. Innovative approaches to patient and public involvement and local patient and public partnerships are always encouraged.
Are you interested in becoming a patient research ambassador?
Your local NHS needs Patient Research Ambassadors to tell patients, the public and NHS staff why research is important. To do that effectively we all need to work together.
By joining the Involvement4Access community you can find out the most effective ways available for you to get involved with promoting research locally. You can also access information about who is involved and what is happening in the NHS across England along with some useful tips and information to help you. If you are interested please contact our Patient and Public Involvement Manager.
For further information contact our Patient and Public involvement Manager or contact your Primary Care Local Research Network
Information you might find helpful
Case studies Patient Richard Stephens explains why getting involved in research is important for patients and for the NHS
- People in research website is to help members of the public find out about how they can be involved in research and for researchers to find people to become involved in their work
- INVOLVE is a national advisory group which supports greater public involvement in NHS, public health and social care research. INVOLVE provides a range of publications/guides for researchers, members of the public and commissioners.
- Involvement4Access is a resource for the research community, which contains guidance and examples of best practice on how to engage and empower Patient Research Ambassadors.
- invoNET is a network of people working to build evidence, knowledge and learning about public involvement in NHS, public health and social care research.
- List of Patient Support Groups
- Healthwatch England
- Association of Medical Research Charities